This webpage explores the law, including guardianship law, in Australia relating to withholding and withdrawing life-sustaining treatment from adults who have capacity, and those who do not. Visit our webpage on children and end of life decision-making for information about medical treatment decisions for children under 18 years of age.
Legality of withholding and withdrawing life-sustaining treatment
Is withholding and withdrawing life-sustaining treatment legal in Australia?
Yes, withholding and withdrawing life-sustaining treatment is legal in Australia so long as the law is complied with. This webpage will tell you about this area of law.
Withholding and withdrawing life-sustaining treatment from adults with capacity
Can an adult with capacity refuse life-sustaining treatment?
Yes. A fundamental principle of health law is an adult’s right to decide what is or is not done to their bodies. This includes the right to consent to or refuse medical treatment. An adult who has capacity can choose to refuse medical treatment even if failure to receive treatment will result in death. An adult can refuse medical treatment on any grounds including for example, religious reasons or personal beliefs about what is an acceptable quality of life. So long as an adult has capacity there are few restrictions on the right to refuse medical treatment. However, for the refusal to be followed it must relate to the medical situation that has arisen (the case of Re T (Adult: Refusal of Treatment) considered this issue).
Must health professionals follow a decision to withhold or withdraw treatment made by a patient with capacity?
Yes. A person’s right to bodily integrity cannot be violated. A health professional who provides treatment despite an adult with capacity refusing it may be liable in criminal or civil law.
Can a patient demand treatment be given to save their life, even if a health professional believes that the treatment the patient has asked for will be futile or not benefit the patient in any way?
No. At common law a health professional has no legal duty to provide treatment that does not benefit an individual, is not clinically indicated, or is not in the individual’s best interests. Such treatment is commonly referred to as ‘futile treatment’ or ‘potentially inappropriate treatment’, and can include life-sustaining treatment. For example, if cardiopulmonary resuscitation were provided to a person so unwell that he or she would be very unlikely to respond to the resuscitation, that treatment could be regarded as futile and not appropriate.
Futile treatment is difficult to define and can include other considerations such as a person’s quality of life. For example, treatment could be regarded as futile if, although achieving its clinical objective, it would not be effective in improving the patient’s quality of life.
A treating health professional will make a decision about whether, in their view, treatment for a patient is beneficial or futile. If the patient disagrees with the health professional’s view, he or she can challenge it. This may involve seeking a second opinion from an independent health professional or health service. Hospitals often have complaints processes to address disagreements, for example, about the benefits of proposed treatment. However, courts have generally decided that decisions about appropriate medical treatment are a matter for health professionals, not the courts or patients.
An examples of a case which considered the issue of futility is Messiha v South East Health and Northridge v Central Sydney Area Health Service.
Withholding and withdrawing treatment from adults who lack decision-making capacity
Can life-sustaining treatment be refused for adults who lack capacity?
In many situations at the end of life a person may not have the capacity to make decisions about their health care and treatment, including whether or not to withdraw or withhold treatment, and are therefore unable to provide consent. In those circumstances, both guardianship legislation and the common law in each Australian State and Territory provide ways in which medical treatment can lawfully proceed (or in some cases, be withheld or withdrawn).
What is guardianship law?
Guardianship laws exist in each Australian State and Territory, and generally apply to adults only (people who are aged 18 years and over). These laws provide a ‘substitute decision-making’ framework, where another person (such as a spouse, family member or friend) or body (such as the Public Guardian or a court or tribunal) can consent to or refuse medical treatment, and make decisions for a person who has lost capacity. Guardianship laws are often complex and significant differences exist between each State and Territory.
In addition to guardianship laws, there are two other ways in which consent to medical treatment can be given for an adult who lacks capacity:
When does the guardianship law apply?
Guardianship law will apply when a person loses the capacity to make decisions about their own health care and medical treatment. There are four major types of conditions which can cause a person to lose capacity:
- intellectual disability;
- acquired brain injury; and
- mental illness.
In some cases, a person may have more than one of these conditions.
Guardianship law and substitute decision-making can occur both at the end of life (for example, a person suffers a life-threatening brain injury in a car accident and has lost capacity), or when a person still has many years to live (for example, people born with intellectual disability, or who are living with a chronic mental illness).
What is substitute decision-making?
Substitute decision-making is the process whereby one person, a substitute decision-maker, makes decisions, generally about health care, medical treatment, or personal affairs, for another person who lacks the capacity to make those decisions. It involves the substitute decision-maker ‘standing in the shoes’ of the person, to try to make the decision the person would have made if they had the capacity to do so themselves. Substitute decision-makers are often required for a person approaching the end of life who has lost capacity to make decisions about their health care and treatment.
There are two major questions that arise in substitute decision-making:
- Who should be the substitute decision-maker?
- How should a substitute decision be made?
Who can be a substitute decision-maker?
When a person still has capacity they can choose who their substitute decision-maker will be, and specify this in an Advance Directive or power of attorney, for example.
However, if the person has impaired capacity and no substitute decision-maker has been appointed, the guardianship legislation gives decision-making powers to the people who are closest to the person i.e. the person’s family, carer or friends. Who can be a substitute decision-maker varies depending on the State and Territory. Where there is no family, friend, or anyone else available or appropriate to be a substitute decision-maker, a court or tribunal can appoint a guardianship official, for example, the Public Advocate or the Public Guardian, to make decisions for the person.
How should a substitute decision be made?
The guardianship legislation in each State and Territory outlines principles and criteria that substitute decision-makers must take into account when making decisions. However, there are three broad approaches used in substitute decision-making:
- The best interests test, which involves a substitute decision-maker deciding what decision would be in the person’s best interests.
- Substituted judgment, where a substitute decision-maker must determine, from the person’s views, wishes and conduct when they had capacity, what decision they would have made if they were now able to make it.
- Supported decision-making, where a person is supported to make their own decisions.
The substituted judgment test is regarded as being more in line with modern guardianship law, however the best interests test is also relevant in determining what the person would have wanted. The approach adopted will differ depending on the law of the State and Territory in which the person resides. Increasingly a supported decision-making approach is becoming part of how these decisions are made.
If health care or medical treatment is provided to the person who lacks capacity without the consent of a substitute decision-maker or the Supreme Court, the health professional may be committing an offence and may be prosecuted.
What is supported decision-making?
A significant development in guardianship law is the United Nations Convention on the Rights of Persons with Disabilities, ratified by Australia in July 2008. Article 12 of the Convention mentions the concept of supported decision-making. This process involves providing support so that a person, such as an adult with a cognitive impairment, can make their own decisions with assistance rather than a substitute decision-maker making the decision on the person’s behalf.
It is unclear at present what counts as supported decision-making, but examples might include providing information to the person so that they can make a decision, communicating decisions made by the person to health professionals, or participating in the decision-making process with them.
In Victoria, the Medical Treatment Planning and Decisions Act 2016 (Vic), which commenced on 12 March 2018, recognises supported decision-making by enabling a person to support another person to make medical treatment decisions. Further information about supported decision-making in Victoria is available on the Stopping treatment (Victoria) webpage.
Other Australian states and territories are yet to introduce legislation which specifically addresses supported decision-making, and as a result there is uncertainty about how supported decision-making will work in the context of medical decision-making at the end of life in those jurisdictions. Questions have been raised about potential legal and practical difficulties associated with supported decision-making and the need for further consideration of these before law reform occurs. Nevertheless, supported decision-making is gaining increasing interest and is likely to form part of other Australian guardianship and medical treatment regimes in the future.
Law by Australian State and Territory
For further information on the laws relating to guardianship and withholding and withdrawing life-sustaining treatment in each State and Territory, select from the list below. These laws relate primarily to adults with impaired decision-making capacity.
- Australian Capital Territory
- New South Wales
- Northern Territory
- South Australia
- Western Australia
Common law (judge-made law) for adults who lack capacity
When can life-sustaining treatment be withheld or withdrawn from an adult who lacks capacity?
There are two situations under common law where it is lawful for life-sustaining treatment to be withheld or withdrawn from an adult who lacks decision-making capacity:
- Where the provision of treatment is not in the patient’s best interest (such as in the case of Airedale NHS Trust v Bland). This decision can be made by the patient’s treating doctors, or the Supreme Court, using its parens patriae jurisdiction.
- Where there is an Advance Directive containing a direction refusing life-sustaining treatment.
At common law family members have no legal decision-making power in relation to the medical treatment of their loved ones. However, in some circumstances family members might be substitute decision-makers under guardianship legislation. This is discussed further on the State and Territory webpages relating to withholding and withdrawing treatment.
What powers does the Supreme Court have to withhold or withdraw life-sustaining treatment?
The Supreme Courts of each State and Territory also have power to make decisions on behalf of people who lack capacity. This is known as the Court’s parens patriae jurisdiction. It provides the Supreme Court with a power to protect the life and bodily integrity of a person who is unable (due to their incapacity) to protect him or herself.
The Supreme Court’s power to decide these matters exists alongside the guardianship legislation in each State and Territory. However, the Supreme Court exercises its power cautiously, and will only become involved in a case where the circumstances warrant judicial intervention. Unless the application is extremely urgent or the guardianship legislation is not appropriate to determine the case, the guardianship legislation is generally referred to first.
The Supreme Court has power to:
- authorise medical treatment, including life-sustaining measures, be provided, withheld or withdrawn; and/or
- provide consent on behalf of a person who lacks capacity.
The Court will decide whether, in all the circumstances, the treatment is in the patient’s best interests.
Many guardianship cases heard by the Supreme Court involve end of life decisions, particularly where health professionals wish to withhold or withdraw life-sustaining treatment that a patient’s family or friends want continued. In some cases the Supreme Court can also decline to interfere with the decision reached by health professionals.
When is it in a patient’s best interests to withhold or withdraw life-sustaining treatment?
The landmark English case of Airedale NHS Trust v Bland provides an example of when it might be in a patient’s best interests to withhold or withdraw life-sustaining treatment.
Bland was a 17 year old man who was injured in the Hillsborough disaster when he was crushed in a football stadium. His brain was deprived of oxygen which resulted in a permanent, catastrophic injury. He was diagnosed as being in a persistent vegetative state (post-coma unresponsiveness). As a result he could not see, hear or feel anything, could not communicate, and did not have any cognitive function. However, his heart kept beating and he was able to breathe and undertake digestion.
Bland was kept alive by artificial nutrition and hydration for over three years before the hospital authority (with the support of his treating doctors and family) approached the court for declarations that the ongoing medical treatment cease, except treatment needed to make him comfortable. If the declarations were granted, Bland would die.
In relation to best interests, the court decided that a doctor only owes a duty to provide treatment to a patient if it is in his or her best interests. Treatment that is futile cannot be in a patient’s best interests, and doctors do not have a duty to provide that treatment. In those cases, the withholding and withdrawing of treatment is lawful.
The court concluded that there can be situations where providing life-sustaining treatment will no longer be in a patient’s best interests. In the case of Bland, the court said it is not appropriate to prolong a patient’s life when the treatment has no therapeutic purpose, such as where it is futile because the patient is unconscious and has no chance of improving.
This case illustrates that a patient’s health professionals are able to withhold or withdraw treatment that does not benefit the patient, or is not in his or her best interests.
Some Australian cases have also considered the issue of best interests. See for example Messiha v South East Health and Northridge v Central Sydney Area Health Service. Some observations from these cases are:
- That it is not in a patient’s best interests to receive treatment that is futile.
- In deciding what is in a patient’s best interests, the courts will consider the extent to which the treatment is burdensome or intrusive, or whether it would be causing the patient unwarranted pain or indignity.
Withholding and withdrawing life-sustaining treatment from adults who have capacity
Brightwater Care Group v Rossiter  WASC 229
Mr Rossiter was a quadriplegic who was kept alive by receiving artificial hydration and nutrition through a tube into his stomach. He had capacity and decided he no longer wanted to receive this treatment. He asked the facility that was caring for him to withdraw the tube. The Supreme Court was asked for declarations about the rights and obligations of the facility and the patient.
The Court decided that as Rossiter had capacity he was entitled to decide the treatment he wished to receive or refuse. The Court noted that the principle of autonomy prevailed over the sanctity of life, and decided that the duty of the facility to provide Rossiter with the necessaries of life did not apply given he was a competent person refusing treatment. A declaration was made that the facility caring for Rossiter could lawfully withdraw the treatment if Rossiter requested it.
H Ltd v J & Anor  SASC 176
J was a 74 year old woman who suffered from post-polio syndrome and Type 1 diabetes. She resided in a high care unit of an aged care facility run by H Ltd. She spent her waking hours in a wheelchair and required assistance for all of her basic toileting and hygiene needs. J’s quality of life was unacceptable to her, and she advised H Ltd that she had decided to end her life by ceasing to take any food, water or insulin. H Ltd asked the court whether it would be lawful to comply with J’s decision.
The court reviewed the Rossiter decision, and concluded that H Ltd had no legal duty to provide sustenance to J.
Re JS  NSWSC 302
JS was a 27 year old man who had been a quadriplegic since an accident when he was seven. Since that time JS needed full ventilator support through a tracheotomy. His health had deteriorated significantly over the last two years to the extent that JS regarded his quality of life as adversely affected. JS decided he did not want to reach his 28th birthday. He requested his mechanical ventilation be withdrawn. The hospital sought orders from the Supreme Court that it would be lawful to do so.
The Court agreed that the hospital could comply with JS’ request, and decided it would be unlawful for a doctor to provide medical assistance if it was refused by a competent adult. The Court also noted that JS’ actions in refusing medical assistance, even knowing that death would result, did not constitute suicide. Therefore, the doctors involved with his medical care would not commit the criminal offence of aiding or abetting suicide.
Withholding and withdrawing life-sustaining treatment from adults who lack capacity
Auckland Area Health Board v Attorney-General  1 NZLR 235
A man suffered from Guillain-Barre syndrome which left him paralysed and unable to communicate at all (this is sometimes called ‘locked-in syndrome’). He had lived this way for a year, required artificial ventilation to survive, and his condition was irreversible. The man’s doctors (with the support of his family and the hospital’s ethics committee) sought a declaration that it would be lawful to stop providing treatment.
Under the New Zealand criminal law there was a duty to provide the ‘necessaries of life’ except if there was a lawful excuse not to do so. The court concluded that the treatment in this case, where the patient was surviving only because of artificial life support, and with no prospect of recovery, could not be considered a necessary of life. Even if there was a duty to provide that treatment, there was a lawful excuse for doctors if withholding the treatment was in accordance with good medical practice. Therefore, the court granted the declaration that it was lawful to withdraw the ventilation.
Messiha v South East Health  NSWSC 1061
Messiha was a 75 year old man who suffered a cardiac arrest, depriving his brain of oxygen. He was admitted to the intensive care unit of a hospital where he remained unconscious and in a deep coma. His treatment included mechanical ventilation and receiving artificial hydration and nutrition. Messiha needed to have his mouth, nose and throat suctioned (as he couldn’t swallow his own saliva), his eyes taped down to prevent corneal ulcers, and he was doubly incontinent. His treating doctor planned to withdraw the life-sustaining treatment, and provide palliative care instead. His family applied to the NSW Supreme Court to prevent the withdrawal of treatment, but were unsuccessful.
The Court accepted evidence from three doctors that continued treatment was not justified on medical grounds, and did not agree with the family’s argument that it was in Messiha’s best interests for treatment to continue. Of significance was unanimous medical opinion from the doctors that there was no prospect of a significant recovery, and the treatment was regarded as futile, except to briefly prolong Messiha’s life. The Court also considered the treatment to be burdensome and intrusive. The deciding judge noted that a court is not bound to follow medical opinion, even where it is unanimous, however it would be unusual for the court not to do so.
Northridge v Central Sydney Area Health Service  NSWSC 1241
A man was admitted to hospital in an unconscious state. He had suffered brain damage after a cardiac arrest caused by a heroin overdose. Six days after admission his treating doctors decided to cease antibiotics and artificial nutrition, and not to resuscitate him should he suffer a cardiac arrest. The patient’s sister applied to the Supreme Court seeking an order that the patient be provided life-sustaining treatment.
The Court was critical of the decision to withdraw treatment, and concluded that the decision was made prematurely. Of significance was expert medical opinion critical of the approach taken by the patient’s treating doctors.
This case illustrates that though doctors are entitled to withhold or withdraw treatment that is not in a patient’s best interests, the Supreme Court can prevent the withdrawal of treatment where it may jeopardise the life, good health or welfare of an unconscious person.
Re T (Adult: Refusal of Treatment)  Fam 95
T did not want to receive blood products as she was a Jehovah’s Witness. She refused blood products following the birth of her child. In conversations about her medical situation, T had assumed that there were other products that would be a satisfactory substitute for blood should a transfusion be necessary. This was not the case, and T needed a blood transfusion to save her life. The court found that the refusal of blood products had been given by T on the basis that alternative treatment was available. The court therefore decided that her refusal of the blood products did not apply to the medical situation that had ultimately arisen.
Withholding and withdrawing life-sustaining treatment
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Cartwright, Colleen, White, Benjamin P., Willmott, Lindy, Parker, Malcolm, & Williams, Gail (2017) Australian doctors’ knowledge of and compliance with the law relating to end-of-life decisions: Implications for LGBTI patients. Culture, Health & Sexuality. (In Press)
Downie, Jocelyn, Willmott, Lindy and White, Ben, (2017) Next up: A proposal for values-based law reform on unilateral withholding and withdrawl of potentially life-sustaining treatment. Alberta Law Review, 54(3), pp. 803-830.
Willmott, Lindy, White, Ben, Cartwright, Colleen, Parker, Malcolm, Williams, Gail (2016) The knowledge and practice of doctors in relation to the law that governs withholding and withdrawing life-sustaining treatment form adults who lack capacity. Journal of Law and Medicine, 24, pp.356-370.
Willmott, Lindy, White, Ben, Cartwright, Colleen, Parker, Malcolm, Williams, Gail (2016) Is there a role for law in medical practice when withholding and withdrawing life-sustaining medical treatment? Empirical findings on attitudes of doctors. Journal of Law and Medicine, 24, pp.342-355.
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Cartwright, Colleen Maria, White, Ben, Willmott, Lindy, Williams, Gail, & Parker, Malcolm Holbrook (2015) Palliative care and other physicians’ knowledge, attitudes and practice relating to the law on withholding/withdrawing life-sustaining treatment: Survey results. Palliative Medicine. 30(2), pp. 171-179.
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McGee AJ. (2014). Does withdrawing life-sustaining treatment cause death or allow the patient to die?, Medical Law Review 22(1), pp. 26-47.
Willmott, Lindy, White, Ben, Smith, Malcolm K., & Wilkinson, Dominic J. C. (2014). Withholding and withdrawing life-sustaining treatment in a patient's best interests: Australian judicial deliberations. Medical Journal of Australia, 201(9), pp. 545-547.
Willmott, Lindy, White, Ben, & Smith, Malcolm K. (2014). “Best interests” and withholding and withdrawing life-sustaining treatment from an adult who lacks capacity in the parens patriae jurisdiction. Journal of Law and Medicine, 21(4), pp. 920-941.
Willmott, Lindy, White, Ben, Parker, Malcolm, & Cartwright, Colleen. (2011). The legal role of medical professionals in decisions to withhold or withdraw life-sustaining treatment: Part 3 (Victoria). Journal of Law and Medicine, 18(4), pp. 773-797.
Willmott, Lindy, White, Ben, Parker, Malcolm, & Cartwright, Colleen. (2011). The legal role of medical professionals in decisions to withhold or withdraw life-sustaining treatment: Part 2 (Queensland). Journal of Law and Medicine, 18(3), pp. 523-544.
White, Ben, Willmott, Lindy, Trowse, Pip, Parker, Malcolm, & Cartwright, Colleen. (2011). The legal role of medical professionals in decisions to withhold or withdraw life-sustaining treatment: Part 1 (New South Wales). Journal of Law and Medicine, 18(3), pp. 498-522.
McGee, Andrew. (2011). Defending the sanctity of life principle: A reply to John Keown. Journal of Law and Medicine, 18(4), pp. 820-834.
McGee, Andrew. (2011). Me and my body: The relevance of the difference for the distinction between withdrawing life support and euthanasia. Journal of Law, Medicine and Ethics, 39(4), pp. 671-677.
McGee, Andrew. (2011). Ending the life of the act/omission dispute: Causation in withholding and withdrawing life-sustaining measures. Legal Studies: Journal of the Society of Legal Scholars, 31(3), pp. 467-491.
White, Ben, Willmott, Lindy, & Allen, John. (2010). Withholding and withdrawing life-sustaining treatment: Criminal responsibility for established medical practice? Journal of Law and Medicine, 17(5), pp. 849-865.
Willmott, Lindy, White, Ben, & Cooper, Donna M. (2006). The Schiavo decision: Emotional, but legally controversial? Bond Law Review, 18(1), pp. 132-159.
Willmott, Lindy & White, Ben. (2006). A model for decision-making at the end-of-life: Queensland and beyond. Medicine and Law, 25(1), pp. 201-217.
Willmott, Lindy & White, Ben. (2005). Charting a course through difficult legislative waters: Tribunal decisions on life-sustaining measures. Journal of Law and Medicine, 12(4), pp. 441-454.
Willmott, Lindy, White, Ben, & Cooper, Donna M. (2005). Interveners or interferers: Intervention in decisions to withhold and withdraw life-sustaining medical treatment. The Sydney Law Review, 27(4), pp. 597-621.
White, Ben, Garwood-Gowers, Andrew, & Willmott, Lindy. (2005). Manslaughter under the Griffith Code: Rowing not so gently down two streams of law. Criminal Law Journal, 29(4), pp. 217-227.
McGee, Andrew. (2005). Finding a way through the ethical and legal maze: Withdrawing medical treatment and euthanasia. Medical Law Review, 13(3), pp. 357-385.
White, Ben & Willmott, Lindy. (2005). Rethinking life-sustaining measures: Questions for Queensland. QUT, Brisbane, Qld.
Carter, Hannah E., Winch, Sarah, Barnett, Adrian G., Parker, Malcolm, Gallois, Cindy, Willmott, Lindy, et al. (2017) Incidence, duration and cost of futile treatment in end-of-life hospital admissions to three Australian public-sector tertiary hospitals: A retrospective multicentre cohort study. BMJ Open, 7(10), Article number-e017661.
Willmott, Lindy, White, Benjamin P., Gallois, Cindy, Parker, Malcolm, Graves, Nicholas, Winch, Sarah, et al. (2016) Reasons doctors provide futile treatment at the end of life: A qualitative study. Journal of Medical Ethics, 42, pp. 496-503.
White, Ben, Willmott, Lindy, Close, Eliana, Shepherd, Nicole, Gallois, Cindy, Parker, Malcolm, Winch, Sarah, Graves, Nicholas, & Callaway, Leonie. (2016). What does “futility” mean? An empirical study of doctors’ perceptions. Medical Journal of Australia, 204(8), pp. 318.e1-318.e5.
Willmott, Lindy, White, Ben, Close, Eliana, Gallois, Cindy, Parker, Malcolm, Graves, Nicholas, Winch, Sarah, Callaway, Leonie, & Shepherd, Nicole. (2016). Futility and the law: Knowledge, practice and attitudes of doctors in end of life care. QUT Law Review, 16(1), pp. 54-75.
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Downie, Jocelyn, Willmott, Lindy, & White, Ben. (2014). Cutting the Gordian knot of futility: a case for law reform on unilateral withholding and withdrawal of potentially life-sustaining treatment.New Zealand Universities Law Review, 26(1), pp. 24-59.
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Lawrence, Sean, Willmott, Lindy, Miligan, Eleanor, Winch, Sarah, White, Ben, & Parker, Malcolm. (2012). Autonomy versus futility? Barriers to good clinical practice in end-of-life care: A Queensland case. Medical Journal of Australia, 196(6), pp. 404-405.
Substitute decision-making and guardianship
McGee, Andrew. (2014). Best interests determinations and substituted judgement: Personhood and precedent autonomy. In Charles Foster, Jonathan Herring, & Israel Doron (Eds.), The Law and Ethics of Dementia (pp. 135-147). Oxford: Hart Publishing.
White, Ben, Willmott, Lindy, & Then, Shih-Ning. (2014). Adults who lack capacity: Substitute decision-making. In Ben White, Fiona McDonald, & Lindy Willmott (Eds.), Health Law in Australia (2nd ed.) (pp. 193-253). Pyrmont, NSW: Thomson Reuters.
Then, Shih-Ning, Patrick, Hilary, & Smith, Nicola. (2014). Reinforcing guardianship regimes through assisted decision-making: A Scottish perspective. The Juridical Review, 2014(4), pp. 263-279.
Then, Shih-Ning. (2013). Evolution and innovation in guardianship laws: Assisted decision-making. Sydney Law Review, 35, pp. 133-166.